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Join us on May 23rd for The Matty Fund’s 13th 5k run/walk for epilepsy! Race day registration starts at 8:30 a.m. in the parking lot of Fat Belly’s Pub in North Kingstown (Quonset). New race route in Quonset, kids fun zone, mighty dash races and post race festivities at Fat Belly’s Pub. Those who have pre-registered can pick-up their bid number at Denali in the Wakefield Mall on Friday, May 22 from 3 – 8 p.m. or on the morning of the race starting at 8:30. PARKING: Race Day parking will be at the Quonset ‘O’ Club. Take Route 403/Roger Williams Way to Mainsail Drive and follow signs! SEE YOU THERE!
Welcome to The Matty Fund! We are proud to be Rhode Island’s leading resource for children, young adults and families living with epilepsy.
The Matty Fund provides family resources, raises epilepsy awareness, promotes patient safety and improves the quality of life for children and families living with epilepsy. The organization was founded in memory of Matthew Siravo who passed away from epilepsy May 11, 2003.
Epilepsy affects 3 million Americans and is the third most common neurological disorder. Nearly 200,000 new cases are diagnosed each year. One in every 100 Americans will experience a seizure at some point in their lives, while 3% will develop epilepsy.
Marisol Garcia, executive director of the Matty Fund; Dr. W. Curt LaFrance Jr., the principle investigator for the study; Dr. Susan MacKenzie, director of the Providence VA Medical Center; Karen Gardner, a Veteran patient who participated in an earlier study of nonepileptic seizures; Linda Lynch, development and outreach director of the Matty Fund; and Mary Ford, executive director of Ocean State Research Institute, the nonprofit arm of the Providence VA Medical Center, following a project update meeting at the center on Thursday. | Photo courtesy of the Providence VA Medical Center / Winfield Danielson. Click here to read more
- The Westerly Sun 4/2/15: Matty Fund grant will aid VA Medical Center in epilepsy research, treatment
- The Providence Journal, 12/6/14: Helping R.I. families deal with epilepsy
- Boston Globe, 11/20/14: Governor marks Epilepsy Awareness Month
- WPRI-12, 11/19/14: November declared Epilepsy Awareness Month in RI
- Dan Yorke State of Mind, 11/19/14: The Matty Fund on State of Mind