Helpful Links
Resource Organizations
- Epilepsy Foundation
- Epilepsy Advocate
- Coping with Epilepsy
- American Epilepsy Society
- FACES (Finding a Cure for Epilepsy and Seizures) at NYU
- Living with LGS (Lennox-Gastaut Syndrome)
- Seizure Tracker
General information on seizures and epilepsy
- Growing Up with Epilepsy/Massachusetts General Hospital
- Epilepsy.com
- MedlinePlus on seizures
- WebMD on seizures and epilepsy
- National Institute of Neurological Disorders and Stroke (NINDS)
- Kid’s Health on seizures
- Neurology Channel on seizures
- Mayo Clinic on epilepsy
Medications
News
- Neurology Now
- Medical News Today – Epilepsy
- Easing the Seizures, and Stigma, of Epilepsy, Aliyah Baruchin, The New York Times, Mar 27, 2009
- Cause For Severe Pediatric Epilepsy Disorder Identified, ScienceDaily (Mar. 22, 2009)
- Mississippi Youth Shares Epilepsy Message on Capitol Hill, PRNewswire/USNewswire via Comtex (Mar. 23, 2009)
- I Must Save My Child, Melissa Fay Greene, Parade Magazine (Feb. 15, 2009)
- Eating Well for Epilepsy, Andrew N. Wilner, M.D., Neurology Now (Vol. 51:1, Jan/Feb 2009, pp 17–19, 23)
State/Local Resources
- Katie Beckett
- CEDARR Family Centers
- Disability Determination Services – Department of Human Services
- Early Intervention Program
- Early Periodic Screening Diagnosis and Treatment
- Kids Connect
- Respite Care for Children
- Rhode Island Parent Information Network
- RITE Care
- Paul V. Sherlock Center on Disabilities at RIC
- Rhode Island Disability Law Center
- Assistive Technology Access Partnership
- Assistive Technology Exchange in New England
- Division of Developmental Disabilities
- Office of Rehabilitation Services
- Rhode Island Developmental Disabilities Council
- Rhode Island Dept. of Human Services
Our Mission
The Matty Fund ® will provide family resources, raise epilepsy awareness, promote patient safety and improve the quality of life for children and families living with epilepsy