Helpful Links

Resource Organizations

• Epilepsy Foundation
• Epilepsy Advocate
• Coping with Epilepsy
• American Epilepsy Society
• FACES (Finding a Cure for Epilepsy and Seizures) at NYU
• Living with LGS (Lennox-Gastaut Syndrome)
• Seizure Tracker

General information on seizures and epilepsy

• Growing Up with Epilepsy/Massachusetts General Hospital
• Epilepsy.com
• MedlinePlus on seizures
• WebMD on seizures and epilepsy
• National Institute of Neurological Disorders and Stroke (NINDS)
• Kid’s Health on seizures
• Neurology Channel on seizures
• Mayo Clinic on epilepsy

Nonepileptic Seizures

• Psychogenic nonepileptic seizures

Medications

• WebMD on Finding the Right Epilepsy Medication

News

• Neurology Now
• Medical News Today – Epilepsy
• Easing the Seizures, and Stigma, of Epilepsy, Aliyah Baruchin, The New York Times, Mar 27, 2009
• Cause For Severe Pediatric Epilepsy Disorder Identified, ScienceDaily (Mar. 22, 2009)
• Mississippi Youth Shares Epilepsy Message on Capitol Hill, PRNewswire/USNewswire via Comtex (Mar. 23, 2009)
• I Must Save My Child, Melissa Fay Greene, Parade Magazine (Feb. 15, 2009)
• Eating Well for Epilepsy, Andrew N. Wilner, M.D., Neurology Now (Vol. 51:1, Jan/Feb 2009, pp 17–19, 23)

State/Local Resources

• Katie Beckett
• CEDARR Family Centers
• Disability Determination Services – Department of Human Services
• Early Intervention Program
• Early Periodic Screening Diagnosis and Treatment
• Kids Connect
• Respite Care for Children
• Rhode Island Parent Information Network
• RITE Care
• Paul V. Sherlock Center on Disabilities at RIC
• Rhode Island Disability Law Center
• Assistive Technology Access Partnership
• Assistive Technology Exchange in New England
• Division of Developmental Disabilities
• Office of Rehabilitation Services
• Rhode Island Developmental Disabilities Council
• Rhode Island Dept. of Human Services

Additional Information

• The Psychology of Illness / Coping with Chronic Illness